And I think it's because my old friend dizziness/vertigo slipped back into the picture about a week ago. I'm still feeling good enough to go out and watch live music on a Saturday night until midnight (big stuff for me), but vertigo kind of makes you feel like everything's out of whack. You just want to close your eyes and sit there. It's especially bad for me right now since I have the energy and leg strength to want to do more. It's just that when you're really dizzy, activity makes it worse so you try to 'hang on' and not make yourself dizzy. I mean it takes so little you're even cautious about turning your head too fast. Well my answer to literally everything in the past (especially dizziness) was to "push past it" with physical activity; specifically running. I'd start my jog and I'd get dizzier, but then it would start to abate as the sweat started to pour.
That quit working when I lost my ability to work up enough cardio to even make myself sweat. Not coincidentally, that's when the dizziness really kicked into high gear. So now what do I do? Am I experiencing progression? I don't feel like it, but I can't say no for sure. However, none of this is new stuff. It's just old stuff re-appearing. So what did I do? I tried to run! And I did go about .25 miles doing something that sort of resembled a running stride. It wasn't pretty let me tell you.
Besides the South Park shorts, I probably looked like I was doing the "Thriller" monster dance, but I really don't care. I could do it, keep it up for more than three strides, and it actually did help to abate the dizziness somewhat. It's not 100% gone like it used to when I really could work hard, but maybe, just maybe if I keep it up, I can get to a full mile. .3 is next up. The only thing that really blows about doing stuff like this is that it's not just how strong your legs are that comes into play when you want to start running again when you have MS. It's the leg pain, the foot pain, and everything else that goes on with your legs. If it was simply being weak and not having muscle development, I could push past that. The other stuff at times will make it hard to walk let alone run. So I'm very pleased I could go that far (a whole quarter mile!), but now I really hope in two days my knee won't keep me from continuing. I'd love to be able to make this part of working out. I'll sweat yet this summer from something other than laying in the sun and overheating.
So it's not like the good times just kept on rolling after my last post. I have pretty much stayed right there, but I have to note that the dizziness returning like it has, has got me disappointed and upset. It's not like I can just say "I wonder if my veins re-stenosed?" and just go down to the hospital, get checked and my veins cleaned up. That's the pisser of doing this so early. So glad I did since this all seems to be a process of people starting this, seeing a small number of patients, and then stopping again as they get paranoid since this is not a proven fact yet. Well guess what? Neither are the MS meds. They are far from proven fact in their efficacy as well. Watch this TV special
it's very telling. I mean people will let us pump ourselves full of, let me say it again, UNPROVEN drugs that are toxic, yet they won't let you open an occluded vein? That's just not right in my opinion as they've been ballooning veins that are stenosed for years and it's extrememely safe. Now the stents I have in are not considered so safe, but people are stopping ballooning because of newspaper articles. This pisses me off because when the MS "wonder drug" (eye roll) Tysabri was first put out, it killed a few people. Patients clamored and it was put back on saying that it was done "for compassionate reasons". Well you can do this surgery for that reason too. The one guy in the video doesn't think you should even be checked, but all you have to know is the loose connection with the efficacy of these drugs to know there's not much of a connection there either.
So it's perplexing that I'm getting dizzy again. BUT A) that's not a new symptom, and B) I flippin' ran a little bit and it helped. So once again, I have to note that with secondary progressive MS there is damage. So I may just be stuck in this kind of limbo where I almost really feel solid, but I can work myself up to feeling pretty bad with not much effort; still exhibiting many MS symptoms. That sucks, but man oh man does it beat progression. I can walk and go out and even run (well it looked almost like running) for a little bit. So that has me on the upside of down and the dropped toast is butter side UP today. I've got a lot to be thankful for, and pragmatically, not much to be sour about when you think about where I could be right now had I not had this "unproven and untested and only supported by anecdotal evidence" procedure done (like I give a rat's ass Dr. Freedman). I'm glad he (the skeptic in the video) has my best interest and safety in mind. However, that argument really only holds water on dangerous procedures and drugs. It doesn't hurt to go in and baloon these veins. Just watch the video and you'll see the vascular surgeon talking about the safety. So him being skeptical would not nearly look so smarmy if he said "I totally do not agree that there is any connection to MS, but if you want to balloon your veins, go ahead, it's your dime". Instead he looks like he has an agenda since it's not dangerous to test and balloon and he is cautioning against people doing it, but he'd give you a prescription for a known dangerous drug in a heartbeat. Oh well, he probably thinks he has to save us dumb masses from our uneducated selves!